European Association of Patients
Organizations of Sarcoidosis
and other Granulomatous Disorders
was founded as the international umbrella under which all national patients' organizations
will be represented. Founded in
the Spring of 2001 by SILA (United Kingdom), DSV
(Germany), SSARV (Switzerland) and SBN
(Netherlands), EPOS was joind by BBS (Belgium) in autumn 2006
and by ISARC (Ireland) in spring 2008.
The suffering of the long-term sarcoid patient must be recognized as an unsatisfactory situation. Not only is the cause unknown but a medical cure remains undiscovered. In order to help these patients and those who aim to help them, the European Association of Patients Organizations and other Granulomatous Disorders (EPOS) was brought into being.
On the next pages, the members will present the general thoughts and issues in greater detail and, more importantly, in the 'mother ' languages.
For questions and/or suggestions, EPOS can be reached by mail regardless the language:
Uerdinger Str. 43
D - 40668 Meerbusch
Phone: +49 (0) 21 50 - 70 59 670
Fax: +49 (0) 21 50 - 70 59 671